Grandparents Play An Important Role In The Lives Of Children With Autism – Part 2 of 3
So, to get a better handle on the role grandparents play in the lives of children with autism, the IAN project – along with assistance from the AARP and Autism Speaks – surveyed more than 2,600 grandparents from across the power last year. The grandchildren with autism varied in age from 1 to 44 years old.
And, they learned that many grandparents play a important role for their grandchildren with autism and their families. For example, the survey found that. Thirty percent of grandparents were the first to suggest that their grandchild might have a problem before the child was diagnosed. Another 49 percent supported others who raised concerns about the child. Fourteen percent of grandparents moved closer so that they could help, and 7 percent combined their households to inform out. Nearly three-quarters of grandparents demeanour a role in treatment decisions. Almost one-third of grandparents provided direct child care at least once a week. Half of grandparents take part in fund-raising efforts, such as autism walks. One-third are implicated in political advocacy. Just under one-quarter of the grandparents surveyed said they had done without something they wanted so they could help their grandchild financially, and 11 percent reported dipping into their retirement funds to facilitate with their grandchild’s needs.
So “One of the issues in autism is that there are some proven treatments that may not be covered by insurance. If you know that there’s a treatment out there that might help your grandchild, it’s difficult not to raid your retirement pay for to help pay for it”.
Anderson said that one important thing that often gets overlooked is how much these relationships mean to the grandparents. She said there’s a stereotypical idea that kids with autism are keen and unfeeling. “But, children with autism aren’t cold most of the time, and some grandparents reported loving the child with autism even more than other grandchildren. The grandparents really wanted the public to understand the fight better”.